By Alex Scapens
A HOST of famous faces have backed a campaign to help raise £250,000 in a raffle to save a little girl’s sight.
The BIG JOBS by Big Hearts is in aid of Amelia Carroll, seven, from Poynton, and has prizes including a £40,000 house extension and £10,000 kitchen.
It aims to raise money for a clinical trial at Great Ormond Street Hospital that would use enzyme therapy to help prevent Amelia and other children with CNL2 Batten Disease going blind.
The raffle was launched in December and now has the support of celebrities including comedian Jason Manford, footballer Kyle Walker and Corrie stars Samia Longchambon, Tina O’Brien and Cath Tyldesley.
They have all posted about the campaign on social media to spread awareness and made offers of further help to the family.
Originally just open to participants in the SK postcode, the raffle has now been extended to include M postcodes as well as WA13, 14, 15 and 16.
Mum Lucy Carroll said: “We have been overwhelmed with the huge response so far, we have also had lots of messages asking if we could please open the raffle up to a wider postcode.”
Amelia and her brother Ollie, 10, have both been diagnosed with CNL2 Batten Disease.
It currently has no cure, typically gives a life expectancy of no more than 12 and strips children of all their abilities, while causing seizures, movement disorders and dementia.
Both the siblings have treatment at Great Ormond Street Hospital, which has slowed down the progression their condition.
But Ollie was diagnosed – and therefore began treatment -at an older age so has already been left blind and their parents, Mike and Lucy, now have a race against time to stop Amelia losing her sight too.
Hope has been given by the clinical trial but £250,000 is needed for the treatment to be delivered via compassionate use.
This is why family and friends – including Jo Hoddes – worked tirelessly to set up the huge raffle, which also has a new bathroom and installation worth up to £5,000 and a new driveway or patio worth up to £5,000.
Business figures such as Scott Shashua have also got involved.
Mike said: “As parents, all we want to do is look after and protect our children, and having to watch the two of them suffer like this is unbearable.
“We are absolutely overwhelmed with the support that we have received, and for Jo, Scott and the local celebrities stepping in to help amplify the campaign.
“Sadly we know only too well from Ollie losing his sight, that Batten Disease waits for no one.”
To take part in the raffle visit https://go.rallyup.com/bigjobsbighearts.
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Original posted at www.inyourarea.co.uk